Our HLHS Journey. 

Why transplant? After receiving Gabby’s MRI and Cath results in February, her Colorado team determined she is not a good candidate for the Fontan procedure. She has one functioning ventricle, and unfortunately, it has been slowly declining. She also has lymphatic malformations that put her at high risk for chylous effusions, along with moderate kidney disease. All of this also makes her a high-risk transplant candidate, but ultimately, a transplant is the best option for her

This past week, we traveled to Colorado with Gabby to meet with her heart team and have tubes placed in her ears. Please keep in mind as you read this that I have no medical background aside from caring for Gabby. Corey and I did our best to comprehend the overwhelming amount of information that was presented to us. Good news:  She absolutely rocked her tube surgery — it took about five minutes! While she was under, they were also able to do an echo and draw labs. We were on

A Little Update… I attribute much of Gabby’s growth over the past few months to her sisters. She wakes up every morning immediately...